Procjena općeg znanja o fenilketonuriji i niskoproteinskoj prehrani osoba s fenilketonurijom

master's thesis

• Title (english): General knowledge about phenylketonuria and the low-protein diet assessment in patients with phenylketonuria
• Author: Nina Penezić
• Mentor: Ines Panjkota Krbavčić (mentor)
• Granter: University of Zagreb; Faculty of Food Technology and Biotechnology; (Department of Food Quality Control); (Laboratory for Food Chemistry and Biochemistry); Zagreb
• Defense date and country: 2015-12-19, Croatia
• Scientific / art field, discipline and subdiscipline: BIOTECHNICAL SCIENCES; Nutrition

Abstract

Pravilno provođenje niskoproteinske dijete sa kontroliranim unosom fenilalanina temelj je liječenja pacijenata s fenilketonurijom. Dobro znanje o bolesti i provođenju dijete, oboljelih i njihovih skrbnika/roditelja, moglo bi utjecati na bolju kontrolu koncentracije fenilalanina u krvi, na što upućuju neka istraživanja. Cilj ovog rada bio je procijeniti osnovno znanje o bolesti i niskoproteinskoj prehrani osoba s fenilketonurijom kao i njihovih obitelji, odnosno skrbnika koji brinu o oboljeloj osobi te na osnovu toga uvidjeti potrebu za savjetovanjem s nutricionistom. Obuhvaćeno je ukupno 38 ispitanika, od kojih je 18 osoba s fenilketonurijom i 20 roditelja/skrbnika. Znanje o poznavanju bolesti te odgovarajuće prehrane utvrđeno je putem modificiranog upitnika.Više od 60% ispitanika pokazalo je vrlo slabo cjelokupno znanje. Obje skupine imale su 65% točnih odgovora vezano uz poznavanje bolesti, te 44% točnih odgovora vezano uz niskoproteinsku prehranu. Na pitanja o temeljima pravilne prehrane 31% roditelja i 29% osoba s fenilketonurijom odgovorilo je ispravno. Više od 45% ispitanika zatražilo bi pomoć nutricionista u slučaju nenamjernog gubitka na tjelesnoj masi i zbog nejasnoća u vezi niskoproteinske hrane. Ipak, 28% ispitanika smatra kako je nedovoljna zastupljenost nutricionističkog savjetovanja za osobe s fenilketonurijom.

Abstract (english)

A low-protein diet with the dietary phenylalanine restriction is the only efficient method for treating phenylketonuria (PKU). According to some studies, a good knowledge about the disease and understanding the low-protein diet show a better blood phenylalanine control. The aim of this study was to assess the level of knowledge about the disease and the low-protein diet, as well to determine the need for nutrition counselling in patients with phenylketonuria and their families/caregivers. This study included 38 subjects, 18 patients with PKU and 20 family members/caregivers. A modified questionnaire was used to assess the level of knowledge. More than 60% of all subjects showed poor general nutrition knowledge. 65% of all subjects answered correctly on questions about the disease, and 44% on questions about the low-protein diet. On questions about healthy diet, 31% parents/caregivers and 29% of PKU patients answered correctly. More than 45% of subjects would probably look for nutrition counselling if there is an involuntary weight loss or confusion about low protein foods. However, 28% think there is not enough nutrition counseling present in their treatment plan.

• Keywords: fenilketonurija; edukacija; koncentracija fenilalanina; znanje; niskoproteinska prehrana
• Keywords (english): phenylketonuria; education; phenylalanine blood level; knowledge; low-protein diet
• Language: croatian
• URN:NBN: urn:nbn:hr:159:097048
• Study programme: Title: Nutrition; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra nutricionizma (magistar/magistra nutricionizma)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Access restricted to students and staff of home institution
• Created on: 2017-04-26 12:07:16